Palabras clave
Bioética
Atención dirigida al paciente
Autonomía personal
Herramientas de ayuda para la toma de decisiones
Soporte de decisiones
DOI:
https://doi.org/10.17566/ciads.v10i1.621Cómo citar
Resumen
Objetivo: analizar las ayudas para la toma de decisiones y las ayudas para la toma de decisiones, como herramientas para la toma de decisiones compartida, centrándose en sus similitudes y semejanzas. Metodología: se trata de una investigación teórica basada en el marco de Colaboración de Estándares Internacionales de Ayuda a la Decisión del Paciente, en relación con las ayudas a la toma de decisiones y, en relación con el apoyo a la toma de decisiones, la investigación de Shogren, Wehmeyer, Martinis y Blanck y Quality Rights. Resultados: la ayuda para la toma de decisiones y el apoyo a la toma de decisiones son instrumentos centrales para que la toma de decisiones compartida sea eficaz. por tanto, el apoyo a la decisión y el apoyo a la toma de decisiones convergen para promover la autonomía personal del paciente y su participación efectiva como agente eficaz de toma de decisiones en salud. Conclusión: ambos instrumentos aumentan el control del paciente sobre las decisiones que se toman sobre su cuidado de la salud en la medida en que promueven el derecho del paciente a la autodeterminación.
Referencias
Gawande A. Mortais. São Paulo: Editora Objetiva; 2015. 259p.
Joosten EAG et al. Systematic review of the effects of shared decision-making on patient satisfaction, treatment adherence and health status. Psychother Psychosom [Internet]. 2008 [citado em 1 nov. 2019];77:219-226. Disponível em: https://pubmed.ncbi.nlm.nih.gov/18418028/
Coulter A. Implementing shared decision making in the UK. Zeitschrift für Evidenz Fortbildung und Qualität im Gesundheitswesen [Internet]. December 2011 [citado em 11 nov. 2019];105(4):300-4. Disponível em: https://www.sciencedirect.com/science/article/abs/pii/S1865921711001231 doi 10.1016/j.zefq.2011.04.014
Jansen L. The influence of share decision making on the satisfaction of both patients and doctors [Dissertação online]. Nijmegen: Radboud University; 2018. 77p. Disponível em: https://theses.ubn.ru.nl/bitstream/handle/123456789/7002/Jansen%2C_Lotte_1.pdf?sequence=1
Hearn J, Dewji M, Stocker C, Simons G. Patient-centered medical education: a proposal definition. Med Teach [Internet]. 2019 [citado em 21 nov. 2019];41(8):934-938. Disponível em: https://www.tandfonline.com/doi/abs/10.1080/0142159X.2019.1597258
Sullivan MD. The patient as agent of health and health care. Oxford: Oxford, 2017. 277p.
Albuquerque A. Direitos Humanos dos Pacientes. Curitiba: Juruá, 2016. 288p.
Lee BY. 11 Seconds: How Long Your Doctor Listens Before Interrupting You [Internet]. Forbes: 22 jul. 2018 [citado 12 nov 2019]; [Notícias]. Disponível em: https://www.forbes.com/sites/brucelee/2018/07/22/how-long-you-can-talk-before-your-doctor-interruptsyou/#4b124f741443
Carel H, Kidd IJ. Epistemic injustice in healthcare: a philosophical analysis. Med Health Care Philos. [Internet]. 2014 [citado em 23 nov. 2019];17(4):529-40. Disponível em: https://pubmed.ncbi.nlm.nih.gov/24740808/
Kidd IJ, Carel H. Epistemic Injustice and Illness. Journal of Applied Philosophy [Internet]. 2017 [citado em 25 nov. 2019];34(2) Special Issue. Disponível em: https://onlinelibrary.wiley.com/doi/pdfdirect/10.1111/japp.12172
Fricker M. Epistemic injustice: Power and the Ethics of Knowing. Oxford: Oxford University Press; 2007.
Crichton, P, Carel H, Kidd IJ. Epistemic injustice in psychiatry. BJPsych Bulletin [Internet]. 2017 [citado em 07 dez. 2019];41(2):65–70. Disponível em: https://www.cambridge.org/core/journals/bjpsych-bulletin/article/epistemic-injustice-in-psychiatry/EB50104DD0ACEB212C8B48FB42DF12E0
The Ottawa Hospital [Internet]. Ottawa: 2019. Patient Decision Aids; 07 dez. 2019 [citado 20 dez 2019]; [Notícias]. Disponível em: https://decisionaid.ohri.ca/
Dimopoulos-Bick T, et al. Shared decision-making implementation: a case Study analysis to increase uptake in New South Wales. Australian Health Review [Internet]. 2019 [citado em 25 nov. 2019];43:492–499. Disponível em: https://www.publish.csiro.au/ah/AH18138
Shogren KA, Wehmeyer ML, Martinis J, Blanck P. Supported Decision-Making: Theory, Research, and Practice to Enhance Self-Determination and Quality of Life. Oxford: Oxford University Press; 2019. 320p.
Donnelly M. Healthcare decision-making and the Law: autonomy, capacity and the limits of Liberalism. Cambridge: Cambridge University Press; 2011. 309p.
Brasil. Agência Nacional de Vigilância Sanitária. Como posso contribuir para aumentar a segurança do paciente? Orientações aos pacientes, familiares e acompanhantes [Internet]. Brasília: Anvisa; 2017. Disponível em: https://www.segurancadopaciente.com.br/wp-content/uploads/2017/08/GUIA_SEGURANA_PACIENTE_ATUALIZADA-1.pdf
John G. Wacker. A definition of theory: research guidelines for diferente theory-building research methods in operations management. Journal of operations Management [Internet]. 1998 [citado em 20 nov. 2019];(16):361-385. Disponível em: https://www.sciencedirect.com/science/article/abs/pii/S0272696398000199
IPDAS. International Patient Decision Aid Standards Collaboration (IPDAS) [Internet]. 2003 [atualizado em 11 nov. 2017] [citado em 14 nov. 2019]. Disponível em: http://ipdas.ohri.ca/index.html
Légaré F, et al. Interventions for increasing the use of shared decision making by healthcare professionals. Cochrane Database Systematic Reviews [Internet]. 2018 [citado em 05 nov. 2019];07. Disponível em:https://pubmed.ncbi.nlm.nih.gov/30025154/
WHO. Quality Rights: Protecting the right to legal Capacity in mental health and related services [Internet]. 2019 [atualizado em 11 nov. 2019] [citado em 14 nov. 2019]. Disponível em: https://www.who.int/mental_health/policy/quality_rights/QRs_flyer_eng_2017.pdf
Committee on The Rights of Persons with Disabilities. General comment no. 1: Article 12: equality before the law [Internet]. [citado em 18 jun. 2018]. Disponível em: http://tbinternet.ohchr.org/_layouts/treatybodyexternal/Download.aspx?symbolno=CRPD/C/GC/1&Lang=en
Kitson A, Marshall A, Bassett K, Zeitz K. What are the core elements of patient-centred care? A narrative review and synthesis of the literature from health policy, medicine and nursing. Journal of Advanced Nursing [Internet]. 2012 [citado em 30 nov. 2019];69(1):4-15. Disponível em: https://pubmed.ncbi.nlm.nih.gov/22709336/
Härter M, Moumjid N, Cornuz J, Elwyn G, Van der Weijden T. Shared decision making in 2017: International accomplishments in policy, research and implementation. Z. Evid. Fortbild. Qual. Gesundh.wesen [Internet]. 2017 [citado em 24 out. 2019];123-124:1-5. Disponível em: https://pubmed.ncbi.nlm.nih.gov/28546053/
Stacey D, Légaré F, Pouliot S, Kryworuchko J, Dunn S. Shared decision making models to inform an interprofessional perspective on decision making: A theory analysis. Patient Education and Counseling [Internet]. 2010 [citado em 02 dez. 2019];80:164-172. Disponível em: https://www.sciencedirect.com/science/article/abs/pii/S0738399109005059?via%3Dihub
Blanc X, et al. Publications trends of shared decision making in 15 high impact medical journals: a full-text review with bibliometric analysis. BMC Medical Informatics and Decision Making [Internet]. 2014 [citado em 20 out. 2019];14:71. Disponível em: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4136407/
Makoul G, Clayman ML. An integrative model of shared decision making in medical encounters. Patient Education and Counseling [Internet]. 2006 [citado em 10 out. 2019];60:301-312. Disponível em: https://pubmed.ncbi.nlm.nih.gov/16051459/
Volk R, Thomas-Llewellyn H, Stacey D, Elwyn G. Ten years of the International Patient Decision Aid Standards Collaboration: evolution of the core dimensions for assessing the quality of patient decision aids. Medical Informatics and Decision Making [Internet]. 2013 [citado em 11 nov. 2019];13(Suppl 2):S1. Disponível em: https://bmcmedinformdecismak.biomedcentral.com/articles/10.1186/1472-6947-13-S2-S1
Stacey D, et al. Decision aids for people facing health treatment or screening decisions. Cochane Database of Systematic Reviews [Internet]. 2017 [citado em 11 nov. 2019];(4). Disponível em: https://pubmed.ncbi.nlm.nih.gov/28402085/
Coulter A, et al. A systematic development process for patient decision aids. BMC Medical informatics and Decision Making [Internet]. 2013 [citado em 08 dez. 2019];13(Suppl 2):S2. Disponível em: https://bmcmedinformdecismak.biomedcentral.com/articles/10.1186/1472-6947-13-S2-S2
Burch J, Magalhaes PV. How do decision aids affect the understanding and decisions of people facing health treatment or screening decisions? Cochane Database of Systematic Reviews [Internet]. 2017 [citado em 24 out. 2019];(4). Disponível em: https://www.cochranelibrary.com/cca/doi/10.1002/cca.1693/full?cookiesEnabled
O’Connor AM. Ottawa Decision Support Framework [Internet]. [citado 20 nov 2019]. Disponível em: https://decisionaid.ohri.ca/docs/develop/ODSF.pdf
Elwyn G, et al. Developing a quality criteria framework for patient decision aids: online international Delphi Consensus process. BJM [Internet]. 2006 [citado em 11 nov. 2019];26:333(7565):417. Disponível em: https://www.bmj.com/content/333/7565/417
Perestelo-Pérez L. Manual con criterios de evaluación y validación de las Herramientas de Ayuda para la Toma de Decisiones. Ministerio de Sanidad, Servicios Sociales e Igualdad. Santa Cruz de Tenerife. 2013 [citado em 24 nov. 2019];24:15-151. Disponível em: http://ipdas.ohri.ca/SESCS_2013_HATD.pdf
Elwyn G, Burstin H, Barry MJ, et al. A proposal for the development of national certification standards for patient decision aids in the US. Health Policy [Internet]. 2018 [citado em 05 nov. 2019];122:703-706. Disponível em: https://pubmed.ncbi.nlm.nih.gov/29728288/
National Standards for the Certification of Patient Decision Aids (Final Report). National Quality Forum. December, 2016. Washington, DC. ISBN 978-1-68248-030-4
Stacey D, Légaré F, Lewis KB. Patient Decision Aids to Engage Adults in Treatment or Screening Decisions. JAMA [Internet]. 2017 [citado em 07 dez. 2019];7(318):657-658. Disponível em: https://jamanetwork.com/journals/jama/article-abstract/2648613
Albuquerque A. Capacidade Jurídica e Direitos Humanos. Rio de Janeiro: Lumen Juris; 2018. 266p.
Macmahon JM, Kahn KB. When Sexism Leads to Racism: Threat, Protecting Women, and Racial Bias. Sex Roles [Internet]. 2018 [citado em 12 dez. 2019];78:591–60. Disponível em: https://link.springer.com/article/10.1007/s11199-017-0828-x
Brasil. Decreto nº 6.949, de 25 de agosto de 2009 [Internet]. Promulga a Convenção sobre os Direitos das Pessoas com Deficiências e seu Protocolo Facultativo. Brasília: Presidência da República; 25 ago 2009 [citado em 12 nov. 2019]. Disponível em: http://www.planalto.gov.br/ccivil_03/_ato2007-2010/2009/decreto/d6949.htm#:~:text=Decreto%20n%C2%BA%206949&text=DECRETO%20N%C2%BA%206.949%2C%20DE%2025,30%20de%20mar%C3%A7o%20de%202007
Committee on the Rights of Persons with Disabilities. General comment no. 1: Article 12: equality before the law [Internet]. [citado em 18 nov. 2018]. Disponível em: http://tbinternet.ohchr.org/_layouts/treatybodyexternal/Download.aspx?symbolno=CRPD/C/GC/1&Lang=en
Australian Aged Care Quality Agency. Supported Decision Making in Aged Care [Internet]. [citado em 1 nov. 2019]. Disponível em: https://cdpc.sydney.edu.au/wp-content/uploads/2019/06/SDM-Policy-Guidelines.pdf
Santos RL, et al. MacArthur Competence Assessment Tool for Treatment in Alzheimer disease: cross-cultural adaptation. Arq. Neuro-Psiquiatr. [Internet]. 2017 [citado em 15 nov. 2019];75:1. Disponível em: https://www.scielo.br/scielo.php?pid=S0004-282X2017000100036&script=sci_arttext
United States. Senate. Special Committee on Aging. Strengthening State Efforts to Overhaul the Guardianship Process and Protect Older Americans [Internet]. [citado em 10 nov. 2019]. Disponível em: https://www.aging.senate.gov/imo/media/doc/Guardianship_Report_2018_gloss_compress.pdf
International Guardianship Netwoork. Yokohama Declaration [Internet]. [citado em 01 nov. 2019]. Disponível em: https://www.international-guardianship.com/index.htm
Brasil. Lei nº 10.406, de 10 de janeiro de 2002 [Internet]. Dispõe sobre Capacidade e Direitos Civis. Brasília, 10 jan. 2002. [citado em 12 nov. 2019]. Disponível em: http://www.planalto.gov.br/ccivil_03/leis/2002/l10406.htm
Kohn NA; Blumenthal JA; Campbell AT. Campbell. Supported Decision-Making: A Viable Alternative to Guardianship [Internet]. 2012 [citado em 21 nov. 2019];117:1111-2013. Disponível em: http://www.jennyhatchjusticeproject.org/sites/default/files/supported_decisionmaking_viable_alternative.pdf
Esta obra está bajo una licencia internacional Creative Commons Atribución-NoComercial 4.0.
Derechos de autor 2021 Aline Albuquerque, Cintia Maria Tanure Bacelar Antunes